Mark Johnson

Kathleen Gallagher

“A riveting scientific detective story” (The Washington Post) by two Pulitzer Prize–winning journalists who chronicle a young Wisconsin boy with a never-before-seen disease and the doctors who save his life by taking a new step into the future of medicine. In this landmark medical narrative, Pulitzer Prize-winning journalists Mark Johnson and Kathleen Gallagher share the story of Nic Volker, the first patient to be saved by a bold breakthrough in medicine—a complete gene sequencing, aimed at finding the cause of an otherwise undiagnosable illness. At just two years old, Nic experienced a brief flicker of pain that signaled the awakening of a new and deadly disease, one that would hurl him and his family into a harrowing journey in search for a lifesaving cure. After his symptoms stump every practitioner, it becomes clear that Nic’s is a one in a billion case, a disease that no one has ever seen before. As Nic and his family search for answers, the scientific community is racing to bring about the next revolution in medicine—translating results from the Human Genome Project to treatments for actual patients. At the forefront is the brilliant geneticist Howard Jacob, who starts a lab at the Medical College of Wisconsin. Then Nic’s head physician reaches out to Jacob with an unprecedented of idea. A disease like Nic’s is likely due to a rare mutation: if they could sequence his genes to try to find the mutation, the boy might live. Jacob doesn’t know if he can do it; Nic’s doctors don’t know if it will even work; and no one knows what else might lie in the Pandora’s Box of Nic’s genome. But they decide to try—and in doing so, they step into a new era of medicine. One in a Billion is “a compelling story of a modern medical miracle—the first instance of personalized medicine” (Milwaukee Journal Sentinel) and the birth of a scientific revolution.

The Story of Nic Volker and the Dawn of Genomic Medicine

One in a Billion

Pulitzer Prize-winning journalists Mark Johnson and Kathleen Gallagher chronicle the story of Nic Volker, the Wisconsin boy at the center of a daring breakthrough in medicine--a complete gene sequencing to discover the cure for an otherwise undiagnosable illness. At just two years old, Nic experienced a searing pain that signaled the awakening of a new and deadly disease. For years, through false starts and failed cures, Nic holds on to life, buoyed up by his mother's fierce drive to get him the care he needs. But when even the world's experts are stumped by Nic's illness, his doctors come up with a radical, long-shot plan: a step into the unknown. The next major scientific frontier, following the completion of the Human Genome Project, was to figure out how to use our new knowledge to save lives--to bring genomic or personalized medicine into reality. The quest is undertaken by researchers around the world, but it is only when geneticist Howard Jacob hears about young Nic that the finish line finally comes into sight: It's no longer a race to make history. It's a race to save this boy's life.--Adapted from dust jacket.

In The Methodological Dilemma Revisited, authors examine what in their research processes has given pause, thwarted the process of seamless productivity, stalled the easy research output but has, instead, insisted upon a deeper analysis. This resistance of the expedient explanation has consequences both for the research topics under study and the ways in which qualitative research is conducted in a globalized era of deepening social inequality. The book is pedagogical in its orientation and reflects upon the politics of knowledge construction. Working with queer and minoritized youth communities, and other precarious publics, the authors convey their relationships to groups they are inside, outside, or allied with — posing ethical questions about research designs and worldviews. Themes such as representation, refusal and resistance of hegemonies are nuanced by investigations into the ethical, practical, and scholarly dimensions of the turn towards collaboration in qualitative inquiry. Other chapters examine the place, value and concerns of aesthetic representation of qualitative research. Finally, the authors consider issues of criticality in research, and the concepts of compassion and humility. This book contains contributions from some of the most imaginative qualitative researchers, making the most of their research dilemmas in order to reflect upon the challenges and resistances they encounter in the work of qualitative research.

Creative, Critical and Collaborative Approaches to Qualitative Research for a New Era

The Methodological Dilemma Revisited

Barry Freeman

Kathleen Gallagher and Barry Freeman bring together nineteen playwrights, actors, directors, scholars, and educators who discuss the role that theatre can and must play in professional, community, and educational venues."

Aesthetic Practices and Social Interventions

In Defence of Theatre

David Wallace Booth

How Theatre Educates is a fascinating and lively inquiry into pedagogy and practice that will be relevant to teachers and students of drama, educators, artists working in theatre, and the theatre-going public.

Convergences and Counterpoints with Artists, Scholars and Advocates

How Theatre Educates

This thought-provoking book challenges the way research is planned and undertaken and equips researchers with a variety of creative and imaginative solutions to the dilemmas of method and representation that plague qualitative research. Fascinating and inspiring reading for any researcher in the Social Sciences this comprehensive collection encourages the reader to imagine the world in evermore complex and interesting ways and discover new routes to understanding. Some of the most influential figures in educational research consider questions such as: How does a socio-political context change the course of our research? What counts as a ‘truthful account’ in qualitative research? How do the voices of theory and the voices of ‘research subjects’ struggle to be heard in our research narratives? How can qualitative researchers ethically navigate the difficult terrain of research relationships? How is the material body rendered in qualitative research? Each chapter reveals a range of troubling dilemmas related to the critical aspects of research methodology in the Social Sciences and uses an illustrative case to elucidate the issues encountered by the researcher. Each writer brings a fierce philosophical spirit to her work, showing how methods or techniques of data-gathering grow from the theory and analysis of how research proceeds. A range of topics are addressed in a cross-disciplinary approach which will appeal to all scholars of qualitative research, undergraduate students in education programs and graduate students in a range of disciplines

Creative, Critical and Collaborative Approaches to Qualitative Research

The Methodological Dilemma

Kathleen Gallagher uses the drama classroom as a window into the daily challenges of marginalized youth in Toronto, Boston, Taipei, and Lucknow.

Urban Youth, Engagement, and a Pedagogy of the Real

Why Theatre Matters

What makes young people care about themselves, others, their communities, and their futures? In Why Theatre Matters, Kathleen Gallagher uses the drama classroom as a window into the daily challenges of marginalized youth in Toronto, Boston, Taipei, and Lucknow. An ethnographic study which mixes quantitative and qualitative methodology in an international multi-site project, Why Theatre Matters ties together the issues of urban and arts education through the lens of student engagement. Gallagher’s research presents a framework for understanding student involvement at school in the context of students’ families and communities, as well as changing social, political, and economic realities around the world. Taking the reader into the classroom through the voices of the students themselves, Gallagher illustrates how creative expression through theatre can act as a rehearsal space for real, material struggles and for democratic participation. Why Theatre Matters is an invigorating challenge to the myths that surround urban youth and an impressive study of theatre’s transformative potential.

Why theatre now? Reflecting on the mix of challenges and opportunities that face theatre in communities that are necessarily becoming global in scope and technologically driven, In Defence of Theatre offers a range of passionate reflections on this important question. Kathleen Gallagher and Barry Freeman bring together nineteen playwrights, actors, directors, scholars, and educators who discuss the role that theatre can – and must – play in professional, community, and educational venues. Stepping back from their daily work, they offer scholarly research, artists’ reflections, interviews, and creative texts that argue for theatre as a response to the political and cultural challenges emerging in the twenty-first century. Contributors address theatre’s contribution to local and global politics of place, its power as an antidote to various modern social ailments, and its pursuit of equality. Of equal concern are the systematic and practical challenges that confront those involved in realizing theatre’s full potential.

Timing, organization, and a special interactive dialogue will change a classroom into a happy and successful learning environment.

Kathleen Gallagher

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