Keith Wailoo

Timothy S. Jost

Mark Schlesinger

Rife with criticism, praise, and in-depth analysis of Paul Starr’s work, this lengthy special issue brings together scholars from many disciplines to offer a comprehensive assessment of the life, the times, the promise, the problems, and the paradox

A Twenty-Year Retrospective on the Social Transformation of American Medicine

Transforming American Medicine

Stephen Pemberton

Winner of the History of Science category of the Professional and Scholarly Publishing Awards given by the Association of American Publishers Why do racial and ethnic controversies become attached, as they often do, to discussions of modern genetics? How do theories about genetic difference become entangled with political debates about cultural and group differences in America? Such issues are a conspicuous part of the histories of three hereditary diseases: Tay-Sachs, commonly identified with Jewish Americans; cystic fibrosis, often labeled a "Caucasian" disease; and sickle cell disease, widely associated with African Americans. In this captivating account, historians Keith Wailoo and Stephen Pemberton reveal how these diseases—fraught with ethnic and racial meanings for many Americans—became objects of biological fascination and crucibles of social debate. Peering behind the headlines of breakthrough treatments and coming cures, they tell a complex story: about different kinds of suffering and faith, about unequal access to the promises and perils of modern medicine, and about how Americans consume innovation and how they come to believe in, or resist, the notion of imminent medical breakthroughs. With Tay-Sachs, cystic fibrosis, and sickle cell disease as a powerful backdrop, the authors provide a glimpse into a diverse America where racial ideologies, cultural politics, and conflicting beliefs about the power of genetics shape disparate health care expectations and experiences.

Ethnicity and Innovation in Tay-Sachs, Cystic Fibrosis, and Sickle Cell Disease

The Troubled Dream of Genetic Medicine

In the course of the 20th century, cancer went from being perceived as a white woman's nemesis to a "democratic disease" to a fearsome threat in communities of color. Drawing on film and fiction, on medical and epidemiological evidence, and on patients' accounts, Keith Wailoo tracks this transformation in cancer awareness, revealing how not only awareness, but cancer prevention, treatment, and survival have all been refracted through the lens of race. Spanning more than a century, the book offers a sweeping account of the forces that simultaneously defined cancer as an intensely individualized and personal experience linked to whites, often categorizing people across the color line as racial types lacking similar personal dimensions. Wailoo describes how theories of risk evolved with changes in women's roles, with African-American and new immigrant migration trends, with the growth of federal cancer surveillance, and with diagnostic advances, racial protest, and contemporary health activism. The book examines such powerful and transformative social developments as the mass black migration from rural south to urban north in the 1920s and 1930s, the World War II experience at home and on the war front, and the quest for civil rights and equality in health in the 1950s and '60s. It also explores recent controversies that illuminate the diversity of cancer challenges in America, such as the high cancer rates among privileged women in Marin County, California, the heavy toll of prostate cancer among black men, and the questions about why Vietnamese-American women's cervical cancer rates are so high. A pioneering study, How Cancer Crossed the Color Line gracefully documents how race and gender became central motifs in the birth of cancer awareness, how patterns and perceptions changed over time, and how the "war on cancer" continues to be waged along the color line.

How Cancer Crossed the Color Line

The book ends with the 2003 OxyContin arrest of conservative talk show host Rush Limbaugh, a cautionary tale about deregulation and the widening gaps between the overmedicated and the undertreated.

A Political History

Pain

With Tay-Sachs, cystic fibrosis, and sickle cell disease as a powerful backdrop, the authors reveal how these maladies -- freighted with contentious ethnic and racial meanings for many Americans -- became topics of biological fascination and crucibles of social debate. They unveil a complex story: about different kinds of suffering and faith, about unequal access to the promises and perils of modern medicine, and about how Americans consume innovation and how they come to believe in, or resist, the notion of imminent medical breakthroughs.

Julie Livingston

Peter Joseph Guarnaccia

In February 2003, an undocumented immigrant teen from Mexico lay dying in a prominent American hospital due to a stunning medical oversight—she had received a heart-lung transplantation of the wrong blood type. In the following weeks, Jesica Santillan's t

Jesica Santillan, the Bungled Transplant, and Paradoxes of Medical Citizenship

A Death Retold

Alondra Nelson

Catherine Lee

Our genetic markers have come to be regarded as portals to the past. Analysis of these markers is increasingly used to tell the story of human migration; to investigate and judge issues of social membership and kinship; to rewrite history and collective memory; to right past wrongs and to arbitrate legal claims and human rights controversies; and to open new thinking about health and well-being. At the same time, in many societies genetic evidence is being called upon to perform a kind of racially charged cultural work: to repair the racial past and to transform scholarly and popular opinion about the “nature” of identity in the present. Genetics and the Unsettled Past considers the alignment of genetic science with commercial genealogy, with legal and forensic developments, and with pharmaceutical innovation to examine how these trends lend renewed authority to biological understandings of race and history. This unique collection brings together scholars from a wide range of disciplines—biology, history, cultural studies, law, medicine, anthropology, ethnic studies, sociology—to explore the emerging and often contested connections among race, DNA, and history. Written for a general audience, the book’s essays touch upon a variety of topics, including the rise and implications of DNA in genealogy, law, and other fields; the cultural and political uses and misuses of genetic information; the way in which DNA testing is reshaping understandings of group identity for French Canadians, Native Americans, South Africans, and many others within and across cultural and national boundaries; and the sweeping implications of genetics for society today.

The Collision of DNA, Race, and History

Genetics and the Unsettled Past

Spanning a century, Pushing Cool reveals how the twin deceptions of health and Black affinity for menthol were crafted—and how the industry’s disturbingly powerful narrative has endured to this day. Police put Eric Garner in a fatal chokehold for selling cigarettes on a New York City street corner. George Floyd was killed by police outside a store in Minneapolis known as “the best place to buy menthols.” Black smokers overwhelmingly prefer menthol brands such as Kool, Salem, and Newport. All of this is no coincidence. The disproportionate Black deaths and cries of “I can’t breathe” that ring out in our era—because of police violence, COVID-19, or menthol smoking—are intimately connected to a post-1960s history of race and exploitation. In Pushing Cool, Keith Wailoo tells the intricate and poignant story of menthol cigarettes for the first time. He pulls back the curtain to reveal the hidden persuaders who shaped menthol buying habits and racial markets across America: the world of tobacco marketers, consultants, psychologists, and social scientists, as well as Black lawmakers and civic groups including the NAACP. Today most Black smokers buy menthols, and calls to prohibit their circulation hinge on a history of the industry’s targeted racial marketing. In 2009, when Congress banned flavored cigarettes as criminal enticements to encourage youth smoking, menthol cigarettes were also slated to be banned. Through a detailed study of internal tobacco industry documents, Wailoo exposes why they weren’t and how they remain so popular with Black smokers.

Big Tobacco, Racial Marketing, and the Untold Story of the Menthol Cigarette

Pushing Cool

Peter Guarnaccia

In February 2003, an undocumented immigrant teen from Mexico lay dying in a prominent American hospital due to a stunning medical oversight--she had received a heart-lung transplantation of the wrong blood type. In the following weeks, Jesica Santillan's tragedy became a portal into the complexities of American medicine, prompting contentious debate about new patterns and old problems in immigration, the hidden epidemic of medical error, the lines separating transplant "haves" from "have-nots," the right to sue, and the challenges posed by "foreigners" crossing borders for medical care. This volume draws together experts in history, sociology, medical ethics, communication and immigration studies, transplant surgery, anthropology, and health law to understand the dramatic events, the major players, and the core issues at stake. Contributors view the Santillan story as a morality tale: about the conflicting values underpinning American health care; about the politics of transplant medicine; about how a nation debates deservedness, justice, and second chances; and about the global dilemmas of medical tourism and citizenship. Contributors: Charles Bosk, University of Pennsylvania Leo R. Chavez, University of California, Irvine Richard Cook, University of Chicago Thomas Diflo, New York University Medical Center Jason Eberl, Indiana University-Purdue University Indianapolis Jed Adam Gross, Yale University Jacklyn Habib, American Association of Retired Persons Tyler R. Harrison, Purdue University Beatrix Hoffman, Northern Illinois University Nancy M. P. King, University of North Carolina at Chapel Hill Barron Lerner, Columbia University Mailman School of Public Health Susan E. Lederer, Yale University Julie Livingston, Rutgers University Eric M. Meslin, Indiana University School of Medicine and Indiana University-Purdue University Indianapolis Susan E. Morgan, Purdue University Nancy Scheper-Hughes, University of California, Berkeley Rosamond Rhodes, Mount Sinai School of Medicine and The Graduate Center, City University of New York Carolyn Rouse, Princeton University Karen Salmon, New England School of Law Lesley Sharp, Barnard and Columbia University Mailman School of Public Health Lisa Volk Chewning, Rutgers University Keith Wailoo, Rutgers University

Prologue: Pushers in the city of my youth -- Introduction -- The crooked man: influence, exploitation, and menthol's expanding web -- Selling the menthol sensation -- For people susceptible to cancer anxiety -- Building a black franchise -- Urban hustles and suburban dreams -- Uptown's aftertaste.

In the course of the 20th century, cancer went from being perceived as a white woman's nemesis to a "democratic disease" to a fearsome threat in communities of color. Drawing on film and fiction, on medical and epidemiological evidence, and on patients' accounts, Keith Wailoo tracks this transformation in cancer awareness, revealing how not only awareness, but cancer prevention, treatment, and survival have all been refracted through the lens of race.Spanning more than a century, the book offers a sweeping account of the forces that simultaneously defined cancer as an intensely individualized and personal experience linked to whites, often categorizing people across the color line as racial types lacking similar personal dimensions. Wailoo describes how theories of risk evolved with changes in women's roles, with African-American and new immigrant migration trends, with the growth of federal cancer surveillance, and with diagnostic advances, racial protest, and contemporary health activism. The book examines such powerful and transformative social developments as the mass black migration from rural south to urban north in the 1920s and 1930s, the World War II experience at home and on the war front, and the quest for civil rights and equality in health in the 1950s and '60s. It also explores recent controversies that illuminate the diversity of cancer challenges in America, such as the high cancer rates among privileged women in Marin County, California, the heavy toll of prostate cancer among black men, and the questions about why Vietnamese-American women's cervical cancer rates are so high.A pioneering study, How Cancer Crossed the Color Line gracefully documents how race and gender became central motifs in the birth of cancer awareness, how patterns and perceptions changed over time, and how the "war on cancer" continues to be waged along the color line.

It can be, and has been, used to clarify and to cloud the understanding of disease, and it has the potential both to constrain and to emancipate its subjects."—Regina Morantz-Sanchez, Journal of Interdisciplinary History

Keith Wailoo

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